New Releases from NCBI BookshelfAn Online Decision Aid to Help Patients and Caregivers Decide on Treatments for Sickle Cell Disease [Internet].​An Online Decision Aid to Help Patients and Caregivers Decide on Treatments for Sickle Cell Disease [Internet].

Hydroxyurea, chronic blood transfusion, and bone marrow transplantation can modify sickle cell disease (SCD), reduce complications, and improve survival; however, these treatments are associated with a significant decisional dilemma because of the inherent risk–benefit tradeoffs and the lack of comparative studies. These treatments are underutilized, leading to avoidable morbidity and premature mortality. A web-based decision aid has the potential to provide patients high-quality information about their treatment options and the associated risks and benefits, help them clarify their values, and allow them to share in the process of informed medical decision-making.

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